World Diabetes Day

Today, November 14, is World Diabetes Day. It is a day to bring global awareness to the disease. We want a CURE! My son is 18 and has had Type 1 Diabetes since he was 13. Next month it will be 5 years since his diagnosis. It is easier now than when he was first diagnosed, but it never goes away, never sleeps, never takes a vacation and it can rear it’s ugly head at any time.

Here is a link to see what World Diabetes Day is all about.

Excellent article re: blood testing in schools

I came across this article and wanted to share it here.  Most parents go through battles for their kids’ safety and right to test and treat diabetes while they are in school.  Many parents have to fight to even get the school to sign a 504 plan.  I know I had to, and then they cut out the majority of what I had in the 504 plan and put it in their own form – which was basically a worthless piece of paper.  I insisted that at least his diabetes health management form (which they do require) be included or referenced in the 504 plan.  Here’s how Arizona is handling it and the article mentions that it would be a good thing to follow nationwide.  I’ve been wondering why there isn’t a more universal way to handle this since each school district does it their own way.  The following article can be found here:

Arizona Law Sets National Example in Giving Students Greater Monitoring Control

Patrick Totty
22 May 2008

In the current era of “zero tolerance,” public school students who have diabetes have been caught in a frustrating crossfire.

On one hand, students with diabetes need syringes for injecting insulin and lancets for testing their blood glucose levels.

On the other hand, many schools, wary of inadvertently encouraging or abetting illicit drug use, have set often harsh or impractical regulations in place to govern how students with diabetes may test or self-medicate.

In some schools, type 1 students must trek to the nurse’s office and give themselves injections while being observed. Both type 1 and type 2 students have to go to the nurse’s office to carry out even a finger stick test to determine their blood glucose level.

At the very least, this routine is highly disruptive, both for the student with diabetes and for those around them. Students and teachers are distracted by the comings and goings of classmates who may have to visit the nurse’s office up to 10 times a day.

For the students with diabetes, the constant interruptions take away from the time they spend learning. These rules single out the students, both for their disease and because there is an unspoken accusation that they could abuse the equipment used to control their diabetes.

Arizona Injects Some Common Sense

That’s why the recent news out of Arizona is so refreshing: Governor Janet Napolitano has signed a law that allows public school students to independently monitor their blood glucose levels in class up to 10 times daily and to use the necessary needles and lancets.

The impetus for the law came from a 2005 federal lawsuit in which a couple sued an Arizona high school for refusing to allow their son to carry monitoring equipment. In the suit, which was later settled out of court, the plaintiffs alleged that the school forbade the use of monitoring equipment under its zero-tolerance policy governing needles.

As well as relaxing the stringent regulation of diabetes-related needles and lancets, the new Arizona law allows volunteers and non-licensed school personnel to administer glucagon in emergencies when students have adverse reactions to insulin.

States Vary, But Federal Rules Set Some Guidelines

Nationwide, there is no uniform set of guidelines governing how public school students with diabetes may monitor or medicate themselves. States and individual school districts set their own policies.

However, federal guidelines do set a minimum standard of conduct, in which schools must accommodate the needs of students with diabetes in some fashion.

The first guideline is a Diabetes Medical Management Plan (DMMP), which describes the medical treatment that the student’s doctor and family have developed. A school may ask questions or offer suggestions about a DMMP, but the plan is basically the doctor’s and family’s call.

Section 504 of the Federal Rehabilitation Act bans school districts that receive federal funds from discriminating against students with disabilities. A Section 504 plan outlines how a school will accommodate or provide services to a disabled student.

Both plans work together: The DMMP describes what must be done, and the Section 504 plan describes how the school will allow it to be done. For example, if a student needs to self-test five times a day (DMMP), the Section 504 plan will list where and when those tests will be carried out.

In most cases, school districts insist on closely monitoring what actions students with diabetes may take. Arizona’s step toward softening previously strict regulations may set an example that other states will soon follow.

Today is Type 1 Diabetes Alert Day

Monday April 14th is Type 1 Diabetes Alert Day. My family’s life has forever been changed by Type 1 Diabetes because my teenaged son has had it for a little over 4 years. I realize that many people don’t know exactly what Type 1 Diabetes is, and how it differs from it’s more common cousin Type 2. Type 1 Diabetes Alert Day is a day where we can all learn exactly what Type 1 diabetes IS and ISN’T.

Some facts about Type 1 Diabetes:
* Type 1 Diabetes can strike at any age, it doesn’t only target children, though it is more common to get Type 1 Diabetes as a child.
* Type 1 Diabetes is an autoimmune disease much like Lupus, Rheumatoid Arthritis or Multiple Sclerosis. The body has attacked itself, in this case, the pancreas has attacked the cells that make insulin.
* People with Type 1 Diabetes are completely dependent on insulin every day to stay alive.
* There is no cure for Type 1 Diabetes.
* You cannot outgrow it.
* It cannot be cured by diet or exercise (or with cinnamon, fish oil, foil hats or any other “cure”)
* you do not get it by having a bad diet, or by eating too many sweets.
* Type 1 diabetes is no worse or more severe than Type 2. It is simply different.
* People with Type 1 diabetes are not prohibited from eating sweets. They simply must eat a balanced diet like everyone else, and take insulin for the carbohydrates they eat so that it goes into their cells for energy.
*Type 1 Diabetes is a 24/7 disease. It never sleeps and never takes a break. It must be figured into every moment of every day.

Type 1 Diabetes isn’t:
* Type 1 Diabetes isn’t caused by something we did or didn’t do to ourselves or our children.
* Type 1 Diabetes isn’t contagious.
* Type 1 Diabetes isn’t a death sentence.
* Type 1 Diabetes doesn’t prevent us or our children from doing everything possible in life.

Please share this information with as many people as you can. The misconceptions about Type 1 Diabetes are endless and the entire Type 1 Diabetes community is taking this opportunity to put an end to these misconceptions. Through the greater awareness of the truth about Type 1 Diabetes we hope to advance people and organizations who are dedicated to finding a cure.

For more information on Type 1 Diabetes and research towards a cure, please visit:

www.jdrf.org

ALSO – please go to this link and sign up to be sure the special funding to find a cure for Type 1 Diabetes continues.  This is VERY important for a cure!

Excel Blood Glucose Log sheet

I originally posted an Excel sheet I created to make a log sheet that shows a week on one page, with all the same time lined up (8AM, 10PM, etc.) and the 24 hours goes across the whole page.  If you do not have Excel, I have saved the sheet as a PDF file so you can print this off and write on it.

blood-glucose-log.pdf

I have also created the Excel document as a Google Document, which you can find here:

Blood Glucose Log Sheet

New Carb Factor Directions

I have created a new PDF file with carb factor directions and a list of common foods. Carb Factor Instructions and Common Foods

Updated USDA Food list

I posted about this last year, but it is worth mentioning again and providing a link to the newest food list.  The USDA website has links to download nutrition information free.  You can search for foods on their website, download it to your computer or your Palm-based PDA.  Go to this USDA page for more information.

World Diabetes Day

Today is World Diabetes Day. Go to this link for details!